Tyler's Winter Program

Tyler had a winter program at his school on Friday. It was so cute seeing all of the kids signing and having fun. I didn't think he would do good with all of the people but he did a great job :) He did have a few moments when his class wasn't singing that he needed to go in the classroom to get away but that is okay.

His teachers do a great job with him and the other kids in the classroom--wish they could go with him to Kindergarten next year.

Shew...

Never ending...the boys fight like crazy, they are full of energy, they don't want to eat anymore! You name it they are doing it. Boy do I love bedtime sometimes.

Tyler is like the energizer bunny and Cameron is starting to follow in his footsteps. I can't handle two that way. Troy says that we are always on the go and that he would like to sit and relax. I can't always blame it on the boys because I like to go and do things too. Hopefully we will start to slow down after all of the doctors appointments and holiday programs are over. DOUBT IT!

Update on Cam...

Cameron has been doing pretty well these days. Cam is starting to talk much better however there are still some sounds and words that just aren't clear--we are still doing speech therapy every week for an hour. Some of his new words are: Mt. Dew (hilarious-country slang), "don know" and some other inappropriate words. He has started to not eat as much as he once did concerns me a little bit, but as long as he is healthy I am okay with it.

Cameron just turned 2 at the end of August and we are completely potty trained and have been for about a month or so. GO CAMERON!! He has started to try us more and more, I guess that comes with turning 2.

Cincinnati again...

We made a trip to Cincinnati again for Tyler's 3 month check-up which went well. Once talking with the doctor we found out that Tyler is having tics and they have now put him on another medication to help with his sleep, tics, and possibly some of his anxiety. I was hesitant about the medicine at first because it can mess with your blood pressure but the doc says it is fine and that we need to give it a try. So we started it last night and so far he is sleeping better but that's it--we will give it time and see.

When we set out to go to the doctor we told him that he wasn't going to get a shot ("poked" as Tyler calls it) however the doctor had a different idea. They did some blood work for genetics to see if we are missing something. He was terrified--hates it so bad! It will take up to 3 weeks to get the results back and we also made an appointment for a MRI on the brain scheduled for December 4th. They want to do another MRI to make sure the seizures aren't causing any damage since we haven't had one done since he was 16 months old.

Can't win

I can't win...Tyler went for an appointment in Cincinnati last Tuesday to determine whether or not he has Asperger's syndrome or what he has exactly. Needless to say I feel like I am in the same boat now then before the visit. I didn't find out anything except that he has to have a psychologist testing which he can't get in until June 1, 2010!! He has to have his speech evaluation redone because the doctor doesn't believe that his receptive language is as good as the speech therapist said it was. Can't do that for 6 months because the insurance won't pay for another evaluation within 6 months of each other.

Now this week the poor thing has the FLU!! Just the seasonal flu thank goodness but still the flu. I can't win and neither can he!

Surf City, NC

Vacation is over and back to the grind tomorrow. We made at trip down to Surf City, NC and it was a little rough the first few days. The boys argued over and over and drove us crazy! It did get better. Troy says that he is never going to the beach again. He doesn't like the sand or the sun. Oh well!!

First T-ball game

Tyler had his first T-ball game yesterday--he plays for the Reds. He absolutely loves baseball and is obsessed with the game. We thought that he would do really well since he hits really well and enjoys the game. However after about 15 minutes into the game he had a complete meltdown. He was crying wanting to go home, not wanting to hit, just wanting to get away. Troy would take him into the dugout and try to call him down and let him know it was okay and that no one was going to bother him.

After the game we went home and the boys took a nap which we had to wake both of them up to go to a birthday party. When Troy woke up Tyler he asked him why he got so upset and why he didn't want to play...all the people is what he said. That just broke my heart. It seems like he is getting worse in dealing with social situations that he is unfamiliar with.

More birthday pics...

2nd Birthday

Cameron will acutally turn 2 tomorrow on the 31st...but we had his birthday party on yesterday at the house. It is so much work trying to get the house ready for guests to come and just make a mess. Mop the floors, clean the bathrooms, clean the kitchen, vacuum the rooms, the list could go on and on. That's okay it was for my baby.

We had the party mainly outside and had a bounce house up and of course the trampoline. We wanted to have up a blow up waterslikde but it didn't want to stay up so we nixed that idea. It turned out very nice and not stressful.

Poor Cam...

Cameron went to the doctor last Saturday...said he had a sinus infection plus a double ear infection. The ears have been really gross draining out all kinds of nasty stuff. He was put on Augmentum for 10 days. Needless to say I took him back today because he is no better. He still has the double ear infection and not getting better so now we are going to try Bactrum. If he isn't better by Thursday we will be making a visit to the ENT to see if the tubes need to be replaced. I sure hope not!

Another thing that happened this week...we are looking for a new sitter for Cameron. We have had several issues with his old sitter and diaper rashes and not being cleaned well. So we pulled him out and are looking for a new daycare to go to. Talk about stressful!!

King's Island Fun

We made a trip to King's Island on Thursday for a day of fun. Tyler was so excited to see the rollercoasters. However he is at the in between heights--too tall for some and not tall enough for others. He would ride the Diamondback if he could. We got there around 11:30 or so and didn't leave until 7:00. We had one tired boy on our hands.

Friday was the trip to his neurologist at Cincinnati Children's Hospital for a check-up. He increased his dosage by another ml. Said he was doing good and hopefully we can keep his seizures away. We go back in another 3 months. Before the 3 month check-up we get to go and see a DDBP for the autistic like tendencies. Oh yeah it got moved up from December 22nd to October 27th. Right now I will take it...

Staying busy

We had a really busy weekend. First Tyler had a "Fun Day" at his school on Friday. Followed by swimming at mom's on Saturday then Sarah's Birthday party at Amerisports Gymnastics. The boys were wore out. Then today we went to Troy's work picnic at Jacobson park at 1 til 5 which we only stayed to about 3:30 we had two tired boys on our hands.

Coming up this week...Thursday is a visit to King's Island and Friday we go to Tyler's neurology appointment in Cincinnati.

Some pictures from this weekend's fun...

Brushing

Brushing has been going pretty well with Tyler. Only two more days left and we will have completed the 2 week brushing schedule. Sometimes he doesn't want you to count--meaning he doesn't want you to do compressions followed by the brushing. You have to do in order for it to be effective.

Tyler is also going to the therapy place on Friday afternoon for some more tests by the speech therapist. Not sure what tests but I guess I will find out.

Updates

Updates on Cameron first...

He is stubborn as ever. His is on a roll of telling us NO and pouting with his arms crossed. He is still in First Steps for speech which is going pretty good-slow but good.

Updates on Tyler...

Tyler can be the most loving little boy on certain days but on others he is the hardest most difficult child to handle. We just take it minute by minute with him. We are currently working on the brushing program which is getting "brushed" every two hours during his awake times. Sometimes he has a meltdown and some times he doesn't. Never know on minute to the next!

Support

Tyler has been having a rough time of it lately...and I wanted to say thanks to everyone who is concerned about Tyler and his well being. Today Tyler goes to On the Move Pediatric Therapy to get evaluated for speech. His expressive language is fine but they are concerned about his receptive language. Then tomorrow he gets his hearing tested and then to see an ENT. The fun is starting again!

We have seen some progress since Tyler has started CDCB and seeing his OT has help tremendously. Thanks Pam!

Will keep everyone posted as the progress continues.

Enjoying the water....

Summertime Heat

It was so hot yesterday that I didn't even want to go outside but when you have two boys that is all they want to do. So we got out the slip n slide and a new sprinkler/ball system that we got from Wal-Mart. Tyler loves both...Cameron on the other hand is scared to death of the water. Don't know why. Troy went down the slide and guess what so did I since Tyler and Daddy were calling me a chicken.

Thomas the Train

Last Saturday we took the boys to New Haven, KY to have a Day Out with Thomas. Our train departed at 10:40 so we had to leave quite early just to get there. Tyler woke up early (of course) and was ready to go but Cameron we had to wake up and he wasn't very happy.

We arrive at New Haven and there are some activities to do before Thomas arrived. There were some little train tables to play on, face painting, a bouncer, miniature golf (which they both loved).

The train ride was very relaxing and and enjoyable.














Looks mad!


On the way there--looking sleepy