This is how he looked on Friday when I came home.Last week Tyler had a really hard week. Monday he felt fine. Tuesday he threw up and was out of it and just not himself at all! Tuesday night he had a seizure while sleeping...I just happen to be sitting next to him and discovered this. Wednesday he was still out of it, he was very confused and disoriented. Thursday he was much better--he actually ate for Betty and played outside a little. Well Friday was a completely different story. I woke Tyler up around 6:45 that morning since I had to go to work. I dropped him off at Betty's at 7:30 and he was back out again at 8:00 until 11:00 (which if you know Tyler he does not nap at all!) Once he woke up Betty wanted him to eat something so she asked him if he wanted a biscuit with grape jelly. He said uh no that's for breakfast (silly boy) she proceeded to tell him that he could have that whenever he would like. She when into the kitchen to get the biscuit for him and when she came back into the living room he proceeded to tell her...I TOLD YOU I DIDN'T WANT THAT. My poor baby was so confused and disoriented. He was very emotional and just completely out of it. Seizure again Thursday night while sleeping is what we think is the culprit!
Troy picked him up around the time of the biscuit incident and took him home where he then fell asleep again around 1:30 to 3:30. When I came home from work he was laying on Troy outside with no energy at all. This is from Tyler that is normally like an energizer bunny! Saturday he was still pretty much the same...no energy at all. This one really zapped him like never before.
After many talks with the neurologist team last week they are going to put Tyler into the hospital at Cincinnati Children's Hospital on April 22nd thru April 25th to watch him while doing a video EEG. I'm hoping they can figure out why the sudden episodes. Next Friday can't come soon enough.
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